Welcome to the Brown Vialetto Van Laere UK (BVVL) website

We are the first UK website set up specifically to provide information, offer support and consolidate information on Brown-vialetto-Van-Laere syndrome.

If you are visiting this site, then you or a loved one may already be affected by this rare syndrome. We hope to offer you support and some answers to your questions.

Perhaps you have a SWAN (syndrome without a name) child and are striving for a diagnosis? We do hope this site may provide you and your family with some answers, but please feel free to ask any further questions which may further your understanding.

In the last Year the numbers of recognized BVVL sufferers has grown, and we aim to locate and help more….please support us in doing this.

Please register to us to keep up-to-date with all the latest news and findings, and help us to help you.

Thank you – The BVVL support team